Welcome Dance Marathon followers!

We, the Dance Marathon staff, have joined together to blog about our journey leading up to DM 2011. We want to share our own personal experiences and pathway to creating a generation free of HIV.

Sunday, September 19, 2010

Erections and Addictions

Let’s face it, there are more cheerful topics to talk about out with your friends then those related to HIV/AIDS. The ongoing existence of the virus and disease is something that breeds immense frustration and discouragement, and causes many to throw their hands up in the air and simply want to change the subject. Because of this, it was extremely elevating to come across a video online that discussed the transmission of HIV in such a straightforward, engaging, and overall logical way.

Elizabeth Pisani’s talk, entitled “Sex, Drugs and HIV—Let’s Get Rational,” discusses several of the ways that HIV is still transmitted today, despite the fact that people are fully aware of the dangers of their actions. After listing a few other contributing factors she states that “HIV is [mainly] about sex and drugs, and if there are two things that make human beings a little bit irrational they are erections and addiction.” She goes on to elaborate on how people can sometimes act irrationally, but for perfectly rational reasons, breaking down the reasoning behind things such as sharing dirty needles when clean ones are available.

Through both anecdotes and statistics, she describes how an addict hates the idea of sharing a needle and realizes its risks, but has an even greater fear of getting pulled over by the police with a clean needle in his pocket. She explains the outlook that a dirty needle may or may not transmit a disease that may or may not kill someone in ten years, but a clean needle if caught will most likely send a person to jail for up to a year immediately, where they will almost certainly encounter dirty needles anyway and wind up in the same situation. With the risk of imprisonment out there, addicts feel like they have no choice but to keep their freedom safe over their health.

Pisani does an extremely effective job of inserting wit and amusement into a potentially dry topic, covering invaluable information while still keeping her audience engaged. She highlights information in a way that anyone, whether they are an HIV expert or have never heard much about the virus, can expa

nd their overall grasp on the subject.

DM Love,
Dani Bahrynian
Berkeley Dance Marathon Education Coordinator, 2010-2011


Saturday, July 31, 2010

San Francisco AIDS Walk



On July 18th the Dance Marathon team joined over 25,000 walkers in Golden Gate Park for the SF AIDS Walk.
Together we raised $3,031,551!!!!!
I couldn't believe how many people dedicated their day to walking six miles!
I guess six miles isn't that much for a college student,
but all ages gathered together for this event. Even people more than three times my age!
Now that is
incredible.

I am truly amazed and moved by all the Berkeley teams that attended the event. The UC Berkeley team raised over $18,000 and ranked 33.
There were at least 6 Cal teams (including the Dance Marathon team) which is AWESOME!!! One of the highlights of the day was finding the
Cal band playing on the 5th mile of the walk
Then, dancing and singing to the Cal drinking song!
Way to represent.

The AIDS Quilt also made an appearance on the side lines of the walking path. The AIDS Quilt is the biggest on-going community arts project in the entire world! Each panel remembers and memorializes an individual who lost his or her life to AIDS. Seeing the quilt and reading each panel and exposition truly made this disease real. Its hard to grasp the magnitude of such a horrific disease and its even more difficult to realize that each number and statistic is made up of individuals. But reading these panels gave me the opportunity to meet some of these individuals and better understand the reality of AIDS.


Overall the SF AIDS walk was a moving experience.
From joining thousands of other walkers to fight against AIDS to learning about individuals who were greatly affected by the disease, I definitely feel more connected and educated about the vastness of the disease.
I look forward to doing the walk again next year!
You should join me!
--


The SF AIDS walk helped make this video about Carina, a 15 years old who lives with HIV.
I find this video quite moving and recommend everyone to watch it to learn more about Pediatric AIDS.





Tuesday, June 15, 2010

EGPAF: A Time for Heroes Celebrity Picnic!!!!


Sunday I volunteered with the Elizabeth Glaser Pediatric AIDS Foundation ... at a celebrity picnic!!! The Glaser foundation puts on a celebrity picnic every year to raise funds to help fight against pediatric AIDS. This year, I had the opportunity to volunteer at their event with my friend Kiira Johal (and last year's Dance Marathon Co-Chair). Oh and let me tell you, the foundation went ALL out for this one! It was nuts! And the coolest part, I got to learn more about pediatric AIDS from the very organization that initiated research in the area! What a treat :)


I arrived 2 hours before the picnic started to get acquainted with the my volunteer task and set up the foundation booth. During set up, Jesse McCartney and his band were practicing on stage singing Leavin' (love this song!). He sounds much better live than I expected. People started to trail in around 12pm and enjoyed the various activities offered by the foundation. Some of these activities included an African drum circle, making T-shirts with Michael Stars, decorating jeans with 77kids and American Eagle, a Kodak photo booth, and making special kit for mommies and babies in Africa and India. The kit making booth seemed to be one of the most popular activities. At this station guests had the opportunity to read more about the needs of mothers and children living with HIV and AIDS and compile a bag of goodies to help meet their needs.


Even more memorable than all the scrumptious food, the many activity booths, and meeting famous celebs, were the incredible speakers. An 11 year old boy along with his younger brother spoke about what it's like to live with HIV. I only heard a portion of their dialogue (I was working at the foundation booth) but what I did hear was extremely moving. These two boys only recently found out they live with HIV in their bodies. These two boys fear of being treated differently by their peers. At such a young age they are forced to deal with disease. Despite all of this, the boys spoke about their love for one another. The younger brother shared how having an older brother helps him through all of the tough times. He said that he is happy he has a brother going through the same thing as him. He looks up to him and loves him very much. Hearing these brothers speak brought Pediatric HIV and AIDS into reality for me. Its children like them who reinforce the importance of the Elizabeth Glaser foundation. Without this foundation, these two brothers would not have access to the medication they need. The EGPAF gives them hope. They make a generation free of HIV possible.


Later on Elizabeth Glaser's son, Jake Glaser, spoke about his mother and her legacy. Elizabeth Glaser contracted HIV from a blood transfusion and unknowingly passed the disease on to her two children. When she went to seek help, doctor's told her that no research had been done on HIV in children and no medication was available for her daughter. After her daughter passed away from AIDS, Elizabeth Glaser started the foundation to continue her fight against Pediatric AIDS and to save her son's life. Now Jake is 25 years old and carries on her legacy. Jake spoke about the foundation today... it started out with Elizabeth Glaser and her three friends sitting at a table brainstorming and now the foundation has prevented transmission from mother to child in over 9 million women! How incredible?! There is so much beauty to Elizabeth Glaser's life. I suggest reading more :) http://www.pedaids.org/About-Us/Our-Foundation

Overall, my experience at the EGPAF celebrity picnic was pretty awesome!
I ate great food, met celebs, and most of all, deepened my understanding of Pediatric AIDS. Not to mention, the event raised 1.3 million dollars! Crazzzzziinesssss :)

If you would like to know more about the celebrity picnic, here is a page you should check out. http://www.pedaids.org/getdoc/8ca68563-f814-48f2-9fc7-d7768fc141df/A-Time-For-Heroes-2010


Much DM Love,
Jen Devries
Berkeley Dance Marathon Outreach Director 2010-2011